La Crosse Area Celiacs Celiacs helping Celiacs...Serving the La Crosse Area
A support group for people with celiac disease and dermatitis herpetiformis in the La Crosse, Wisconsin Area. A resource unit for the Celiac Support Association.

Celiac Disease: Frequently Asked Questions

What is celiac disease?
Celiac is a hereditary, autoimmune disease that damages the small intestine and interferes with absorption of nutrients from food. People who have celiac disease cannot tolerate proteins called gluten, found in wheat, rye and barley.

What are symptoms of celiac?
Symptoms associated with celiac may include gas, recurring stomach pain and bloating, constipation or diarrhea, weight loss or gain, fatigue, unexplained anemia, bone or joint pain or osteoporosis and fertility or neurological problems. Children with celiac often experience delayed growth as a result of malnutrition. However, some people who test positive for celiac may exhibit no symptoms at all. These "silent celiacs" are at risk for the same long-term complications as other celiacs -- despite their lack of symptoms.

What is dermatitis herpetiformis? What does it have to do with celiac disease?
Dermatitis herpetiformis (DH) is a severely itchy skin condition that often starts abruptly, affecting the elbows, knees, buttocks, scalp, and back. It usually starts as little bumps that can become tiny blisters and then are usually scratched off. DH can occur in only one spot, but more often appears in several areas. While most individuals with DH do not have obvious GI symptoms, almost all have some damage in their intestine. They have the potential for all of the nutritional complications of celiac disease. It is believed by some GI professionals that most DH patients do indeed have celiac disease.

Who does celiac affect?
Celiac affects 2.2 million people -- one in 133 Americans. An overwhelming 97% of the affected population is currently undiagnosed or misdiagnosed.

What are the causes of celiac?
Why celiac is triggered at a certain point is unknown. However, it is the only autoimmune disease that has a known culprit gluten.

How is celiac treated?
While some drug treatments are currently in the research and development phases, there is no known medical or pharmaceutical cure for celiac. The only way to treat celiac is to follow a 100% gluten free diet.

Attitude is everything when living a gluten free lifestyle. A positive attitude, rooted in the knowledge that living gluten free can eliminate symptoms and help one's body heal from the ravages of celiac, helps patients as they make the extra effort to become more educated, read labels, speak to restaurant staff and resist the temptation to "cheat" on the diet.

What are the long-term effects of untreated celiac?
In addition to damage of the small intestine, long-term effects of undiagnosed or untreated celiac disease include cancer, osteoporosis, miscarriage, an increased risk of fetal congenital malformation in pregnant women and delayed growth and short stature in children. While symptoms may show improvement when a gluten free diet is followed, more research is needed to determine long-term consequences of celiac and, ultimately, discover a cure.

Are the villi permanently damaged in a patient with Celiac Disease and how long does it take for the villi to return to normal?
The villi are not permanently damaged. The intestine is an organ, which renews itself every three days. Therefore, if the damage is exclusively due to CD, the villi will be reformed once on a gluten-free diet. The time for the villa to return to normal varies between individuals.

Can I outgrow Celiac Disease?
If you are a biopsy proven Celiac, you will not outgrow the disease since Celiac Disease is now considered to be an autoimmune disorder like diabetes and rheumatoid arthritis.

Is there hidden gluten?
Yes, you should always be careful before ingesting anything. Take candy bars for instance. Snickers full size are gluten free, however Snicker Pop'ables are not.

Is Celiac Disease a food allergy?
No, Celiac Disease is not a food allergy; rather it is an autoimmune disease. Food allergies, including wheat allergy, are conditions that people can grow out of. This is not the case with Celiac Disease.

What about oats?
Many recent studies indicate that the protein found in oats may not be harmful to most people with celiac disease. However, there is concern that the oats may be contaminated with wheat during the milling and processing. Please consult your physician or dietitian before adding oats to you or your child's diet.

La Crosse Area Celiacs | Phone: 608-780-8564 | Email: baltskml@centurytel.net
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